You are here:
Home
| Ethics and Management
Ethics and Management
All five centres and the coordinating centre operate within the legal requirements laid down by the Human Tissue Authority (Human Tissue Act 2004), governing collection, storage, sample distribution for research and disposal of post mortem tissue.
- Each brain bank and the coordinating centre is governed by a management committee that comprises expert doctors and scientists (in neuropathology, neuroscience and neuropsychiatry), independent experts and lay members. The management committee assesses each application for research to ensure tissue is used wisely, responsibly and efficiently.
- Each donation is used towards a number of approved projects.
- The identity of the donor is never revealed to the researcher, and the donor's identity will never be revealed in any publication. Database security is the highest available.
- All potential donor recruitment and clinic assessments are undertaken in compliance with the Mental Capacity Act (2005) and other good practice guidelines.
- Participation in Brains for Dementia Research is entirely voluntary, and potential donors can withdraw at any time without giving a reason. Their nominated representative or next of kin can subsequently withdraw the potential donor on the donor's behalf, at any time, either before or after donation has taken place, should they wish to do so.
We are very conscious that dementia is an upsetting and traumatic condition for both sufferers and carers. We are mindful of the fact that brain donation takes place at a distressing time for family members.